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A Request for Help

YOU can help save Hailey
…and the thousands like her around the country

On June 6, 2007, our daughter Hailey Jaye Meltz, then 20 MONTHS old, was diagnosed with an inoperable brain tumor called a Pediatric Low Grade Astrocytoma or “PLGA” (also referred to as “JPA” or Juvenile Pilocytic Astrocytoma. We will use PLGA throughout this letter). Currently, there is no cure for this tumor and the treatments that do exist are outdated, toxic, and ultimately torturous to the thousands of kids affected.

Brain tumors are the #1 cause of cancer death in children, and the #2 overall cause of childhood death behind accidents. PLGA’s are the most common type of childhood brain tumor, yet sadly, funding and research for better treatments and an eventual cure lag dramatically behind other cancers. There is hope, but your generous donations are desperately needed to speed up progress toward PLGA SPECIFIC RESEARCH as the race against the clock has begun and time is something these forgotten children and their families cannot afford.

We, the parents of Hailey and her older sister Faith, are writing this to assist fundraising efforts to change the outlook for our family and the thousands like us around the country. We plead for your financial support in the search for kinder, gentler treatments for these kids and a 100% cure. According to experts, with new scientific advances the acceleration of research to find more effective therapies for PLGA is quite realistic, but... read more -->

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Hailey Picture

Tuesday, February 4, 2014 - 8:43am

Just a quick update to say that Hailey has started her new treatment (RAD001).  It is a pill she takes from home each day.  It's not a chemo, so it's not been making her sick.  We will be doing regular blood draws to watch for other negative side effects, but so far so good.  Now lets hope it works in keeping the tumor at it's current size or smaller!

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