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Tuesday, September 24, 2013 - 8:27pm

We just got the results of Hailey's most recent MRI.  The tumor appears to be the same size as last time.  No growth, but no shrinking either.  Also, the cyst that we have been watching appears to have gotten bigger.  The neurosurgeon is looking closer at it and we all have to determine if they need to go in and drain it at this time or wait longer to see if it shrinks on it's own.  Not real excited about that news.  We were hoping for shrinking of the tumor and the cyst, but the MRI results in general could have been worse.  For now we will stay the course.  Hailey has been doing very well overall (minus her usual quirks) and is not showing any obvious symptoms of the cyst at this point.  Her and Faith's summer were good and school is going very well so far.  So we will see what the next few weeks of discussion brings.  Stay tuned. 

Tuesday, September 24, 2013 - 8:23pm

We just got the results of Hailey's most recent MRI.  The tumor appears to be the same size as last time.  No growth, but no shrinking either.  Also, the cyst that we have been watching appears to have gotten bigger.  The neurosurgeon is looking closer at it and we all have to determine if they need to go in and drain it at this time or wait longer to see if it shrinks on it's own.  Not real excited about that news.  We were hoping for shrinking of the tumor and the cyst, but the MRI results in general could have been worse.  For now we will stay the course.  Hailey has been doing very well overall (minus her usual quirks) and is not showing any obvious symptoms of the cyst at this point.  Her and Faith's summer were good and school is going very well so far.  So we will see what the next few weeks of discussion brings.  Stay tuned. 

Friday, May 31, 2013 - 1:45pm

We received the results back from Hailey's latest MRI.  The tumor itself appears to have shrunk some, but the cyst we have been watching for a little while now appears to have grown.  At this point we are going to continue to watch it.  If necessary, she will have to have surgery to drain the cyst.  We're obviously hoping it doesn't get to that point.  Hailey is doing pretty well overall.  Many of the stomach issues she was having have diminished or gone away since being off the Vincristine.  Still lots of quirks and challenges with her, but all in all we are getting by fine.  Both her and Faith enjoyed the school year and learned a lot.  They both had excellent teachers and worked hard and did well in school.  Now we're shifting our thoughts to a hopefully fun and drama-free summer.  Last summer is when things really went downhill for Hailey and us, so lets hope this summer we can make up for it.  We shall see...

Friday, February 15, 2013 - 12:15pm

The MRI showed that the tumor is stable, possibly even shrunk a bit.  Stay the course for now...