24,020,599 Visits from family and friends!  

See Our Photos

Sort Newest First or Oldest First

Sign-up to be notified of updates of our journal

Thursday, December 4, 2008 - 4:33pm

It's been a while since we last updated. 

First, we wanted to make everyone aware we now have NEW PRODUCTS AND DESIGNS available for purchase in our online store.  Please check out the store tab on our site for new t-shirt and hat designs and brands/fit, and even a new custom designed team hailey bracelet, among other things. 

Purchases from the store serve two important purposes: 1.) They are like a walking advertisement for Team Hailey and the PLGA Foundation.  They help show your support for our cause and help us spread the word in ways we could not otherwise.  And 2.)  Proceeds from the store go to a flexible pool of money that our family uses to offset costs or reinvest in fundraising.  It is an important piece of revenue in this process as everything else we do in the way of fundraisers goes directly to the PLGA Foundation for research.  

Now to an update on Hailey.  She had her "end of chemo" MRI last Tuesday.  There was no change one way or another in the size of the tumor.  Not what we were hoping for, but better than the alternative.  We go to Madison next week for Hailey's eye appointment, then a return trip on December 19th for her port removal surgery, and then it truly is a wait and see (and hope) approach.  We will have MRI's every 3 months and are PRAYING to be blessed with a LONG break from having to make another difficult decision.  And most importantly, praying that the fundraising efforts that we, the PLGA Foundation, and the other PLGA families will continue lead to the kinder, gentler treatments and cure we all need.  She will keep her feeding button for now as she still does not get enough variety with what she eats orally (although she eats plenty of what she chooses to eat) and it is a good safety net for now if we have to give medicines as she is so sensitive to what she will take orally.

Hailey and Faith are both doing very well.  Hailey is doing everything a normal 3 year old should be doing.  She's still lower in weight than we would prefer, but she is on the growth chart at 28 pounds which is a definite improvement from where we started.  At times she has her little quirkes that are likely a result of everything she has been through in the last couple years (basically elevated levels of "3 year old" type behavior) but she truly is a joy to be with and a good little girl.  Big sister Faith is also doing very well.  She turned 5 in November and continues to also develop into quite the young little lady. She has a good sense of humor (as does Hailey) she's active, kind, and loves to run around, do art, play with her friends/cousins/neighbors and her sister, watch Barbie movies, dress up, wrestle with daddy, and play at places like air it up or monkey joes.  All in all, we could not ask for too much more out of the last couple years.  So I guess you could say we're hanging tough on this end.

  

Sunday, October 19, 2008 - 7:56pm

The Milwaukee Golf Outing went well.  We had gorgeous weather and the course was outstanding.   The level of golf that was taking place throughout the outing was nothing to write home about (and certainly did not match the quality of the course) but we definitely had a good time and found our home for next year. 

The outing NETTED about $5,500 for the PLGA Foundation.  The attendance was down from last year, but we have some ideas and volunteers to help us double or triple our results next year.  Special thanks to The Marek Group and Packaging Solutions for their major sponsorship and support, as well as the several other people and companies that supported the event in one way or another.  And huge thanks again this year to Uncle John for coordinating the event and to all those who helped him in the process.  Out of love for his niece and his family, John found a way to pull this together again this year despite very hectic lives of their own. 

Next week starts home chemo.  Hopefully the last time we have to do anything like it for many many months.  

Halloween is approaching fast. Faith will be going as Bat Girl this year (believe it or not, she picked it from about 7 other princess or hanna montana related choices).  Hailey does not want to dress up.  She wants the candy, but she of course does not want to put on any clothes that are unfamiliar to her.  She is telling everyone she's going as snow white, but that's because she has a snow white hair band she's going to wear (and wears often) and in her mind that qualifies as a costume and makes her eligible for candy.  Maybe next year she will dress up.  Faith will have to carry the load for the Meltz ladies this Halloween as far as costumes go, but they'll both be out there filling up their goody bags.        

Thursday, October 9, 2008 - 1:13pm

Here is a link to our appearance this morning on the show out of Milwaukee called 'The Morning Blend'  http://www.themorningblend.com/NewsArticle/tabid/1474/xmid/26124/Default.aspx

Thanks again to Kim Kohlbeck for setting this up for us!

Everyone involved with the show was very nice and easy to work with.  We cannot say enough how much we really appreciate the opportunity Molly and the rest of the team gave us.  We're forever grateful for their preparation and support.  And as further demonstration of what a pleasant and positive experience we had with them, before we even returned home from Milwaukee this morning there was a nice email from one of the show hosts (Molly) thanking us for our appearance and wishing us all the best. 

Not sure how long the link above will last, but at some point we will try to get a permanent copy under the IN THE NEWS tab of our site.

Monday, October 6, 2008 - 12:32pm

I neglected to mention in last week's update that we had Hailey assessed cognitively and physically last week by the Outagamie County Birth to 3 team and we are happy to report she is testing at or ABOVE her age in all areas!!  This is obviously great news considering the trauma her brain and body have been through the last 18 months. 

The Tomahawk Golf Outing took place on Saturday.  We raised just under $2000.00 which is about half of what we raised last year, but attendence was down as well. Mary and Brad at Edgewater were very gracious hosts and we all had a very good time.  Thanks to everyone who participated in the event, and to those who spent their valuable free time planning and working the event. 
We have set the date for next year, reserving Edgewater for Sat. Oct. 3rd! As of right now Hailey and Faith will be there for everyone in Tomahawk to finally meet them and put a face with the names!
 
This coming Saturday is the Milwaukee Golf Outing.  Details can be found in the EVENTS area of the site.  Here's hoping for great weather like we had on Saturday.  If you are going to be in the area, or know people in the area who would like to participate, there is still time to sign up through the site.