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Friday, June 15, 2007 - 9:18pm

This one deserves a seperate entry...

We would like to thank Dr. John Edwards (Hailey and Faith's pediatrician in Appleton) for the work he and his staff (and even his wife) have done on our family's behalf this last week. He was the person who had the horrible job of breaking the news to us last Wednesday, but he has not left our side since. We cannot say enough about the compassion he has shown us and the effort he has put in to set up appointments for us, answer questions, give us advice and support, and help guide us through this nightmare. We will never forget what he has done for our family. We've of course told him and will keep telling him how much his support has meant, but we felt it was important for all of you to know what a blessing he has been for us. He is truly a great man.

Friday, June 15, 2007 - 9:10pm

Another long day in the books.

We went to Madison today with Hailey for the start of her eye tests with the opthamologist at UW, Dr. Struck. Long story short, her vision does not appear to be affected at this point. More tests will be done early next week at UW prior to her biopsy on Wed and if this is the kind of tumor we fear it is, we will get to know Dr. Struck all too well over the coming years.

Monday and the rest of next week is big for our family. After next week we will know the exact type of tumor we are dealing with and then begin to work with Dr. Iskandar and the team at UW to put the treatment plan in place to beat this thing! Please pray for a successful procedure WITH NO COMPLICATIONS for Hailey, and for Hailey and our family to find peace and comfort as we go through what will be a difficult week.

Thursday, June 14, 2007 - 10:52am

As Shannon and I read our guestbook and take countless emails and phone calls from people praying for Hailey and our family, we find ourselves blown away by the love and support we have received. We just needed to let you all know how much you mean to us and how completely overwhelmed (in a good way) and strengthened we are by your thoughts and concerns. We will never be able to fully express what your love and prayers have meant and will mean in the difficult times ahead. The toughest days are likely yet to come, but we do not feel alone and we are more determined than ever to fight for our little girl and her sister Faith. We love you all! Thank you. We will be checking our guestbook often and updating this site almost daily. Stay tuned....

Wednesday, June 13, 2007 - 10:27pm

Things are starting to happen fast now. This Friday, Hailey has an appointment with a pediatric opthalmologist for Visual Field Testing at UW Madison. It will be difficult to do this test on someone so young, however, it's important to give it a try. It will serve as a baseline to monitor any clinical effects from the tumor either growing or shrinking.

This Monday, Hailey will be admitted to UW Madison in order to biopsy the tumor. She will have a high resolution MRI done of her brain and spine on Monday or Tuesday and then Dr. Iskandar will perform the biopsy on Wednesday. It should take 3 or 4 days to get the results of the biopsy. We need to all pray that it is a germ cell tumor. During our stay, we will also be able to meet with the entire oncology team. We will most likely be discharged on Saturday.

It truly feels like the calm before the storm...